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Sharing Sensitive Personal Data Resulting From Life Science Research

posted on 2023-05-24, 09:19 authored by Erik HedmanErik Hedman, Mattias Strömberg, Markus EnglundMarkus Englund, Niclas Jareborg

This presentation covers the topic "Sharing Sensitive Personal Data Resulting From Life Science Research", in terms of what is sensitive personal data according to the General Data Protection Regulation (GDPR). Moreover, a brief overview of how researchers in Sweden can play by the rules regarding the Ethical Review of Research Involving Humans. The final section of the presentation covers the latest news of the Swedish node of the Federated European Genome-Phenome Archive (

This presentation was presented at the recurring session "Meet a Data Steward" on the 23rd of May 2023. These sessions are organized by SciLifeLab and are open to all researchers affiliated with a Swedish university or institute. Each event starts with a 15 minutes mini-lecture, and 45 minutes of free Q & A. Here you can bring your own research question, discuss data sharing, data repositories, data management plans, compute and storage or other data-related issues with data stewards and other experts from SciLifeLab Data Centre and NBIS (National Bioinformatics Infrastructure Sweden).